Patty Dineen

The view from here

Archive for February 2010

After the Snow: How will we know when Washington, DC starts up again?

So.  We who live in the mid-atlantic are bracing for another large snow storm.  Snow shovels are sold out (I couldn’t even find one in stock on Amazon), and hardware stores are putting piles of water softener salt near the front of the store for people to use on sidewalks and steps.  The TV pundits (in an amazing and fleeting display of nonpartisan and unbiased commentary) are all concurring in saying that Washington, DC was, and still pretty much is, shut down with the two feet of snow they got.  More is on the way, and so they are fretting that DC will be shut down even longer while they dig out yet again.

But how, I wonder, will we be able to tell when Washington starts up again?  I haven’t noticed much getting done there for quite some time.  A very, very long time in fact.  So here’s a modest proposal.  Maybe it would be a kindness to us all if DC would stay snowed in until about, oh, maybe the Fourth of July.  That would be a nice patriotic time to start up again.  And maybe a few months of isolation during which to reflect, do some stretching exercises,  and examine and re-order their priorities would give them (and us all, for God’s sake) a breather and a fresh sense of possibility.  I know I could use a break from hearing about how little they are getting done…I can only imagine how exhausting it must be for them- there in the thick of all that lack-of-progress.  It must be mind-numbing.

So let’s let DC save some money, give the road crews and public transportation employees a nice long vacation, and let the snow fall where and as deep as it may.  Let’s let it stay on the ground until the sun stays out long enough to melt it (as God probably intended anyway).  And if the snow eventually buries the city completely?  Let’s reconvene (online) at that point and talk about picking a new location to be our capitol so we can start over from scratch.  There now. Well I don’t know about you, but as the snow begins falling here, again, I am feeling almost…yes, definitely…hopeful.


Written by dineenp

February 9, 2010 at 6:31 pm

The public is out ahead of health care providers on Celiac Disease

(The following is my reply to New York Times Consults blog January 10, 2010 article by Dr. Sheila Crowe.)

Five months after being diagnosed with Celiac Disease (at the age of 59) one of the most baffling things about the way the medical community views this disease (and there are more than a few) continues to be the perverse insistence that people shouldn’t adopt a gluten-free diet on their own…that it might lead to things like: inability to get a “definitive” diagnosis (so eat gluten again for a while and then test if you want to…or not, by that time a “definitive diagnosis” is not the objective for most people- whose needs are the priority here?); greater expense (almost all foods as grown or raised are gluten-free – how have we reached the point in our view of “food” that we can only imagine mostly buying processed foods?); nutritional deficiencies (many if not most gluten-filled diets are already deficient for lots of reasons, anyone who starts paying close attention to what they eat is almost certainly going to be eating more nutritiously); that going on a gluten-free diet is a “life-long commitment”  (sure, but only as long as you want to keep feeling better, and eat a less health-damaging diet – and let’s be real here, you can quit the diet any time you want to… if you want to.  It’s like saying that “eating is a life-long commitment,” it’s a free country); and the amazing-to-me statement by Dr. Crowe that if someone diagnoses themself, “it may encourage family members to be screened for the disease, even though you may not really have it.”

Could I really have read that right??  That it might lead to MORE screening?  More use of a simple blood test (my insurer paid $98 for the comprehensive Celiac Panel) that could allow someone to discover they have Celiac Disease and to drastically improve their quality of life, and minimize more damage to their health, all with just a change in diet?  Then let’s hear it for people who take things into their own hands because they are tired of waiting for help from the medical community, or who have actually been turned down or belittled when they asked a health care provider whether they should be tested for Celiac Disease.  Why isn’t everyone being told about and screened for Celiac Disease?

I feel that the health care system failed me- for decades- by letting the profit-seeking pharmaceutical companies, device-makers, technology providers, etc., determine the primary course and priorities for health-care providers in this country.  I followed all the rules and they and the system let me down.

Even after decades of lactose-intolerance, some years with abdominal distention, eventual diagnosis with thyroid disease and then osteoporosis, no health care provider ever offered anything other than a new prescription.  Eventually, I decided to look into it myself, and it took me all of a 30-minute Google search to discover that I almost certainly had Celiac Disease (and yes, blood work and intestinal biopsy confirmed that – for the doctors.  I already knew it.)  I also was amazed to learn that there is a home test, the Biocard Celiac Home Test (blood test for TTA) that costs about $40, is very accurate and specific (although not as inclusive as lab testing, but a great start) and although for sale in Canada and Europe…is not for sale anywhere in the United States.

The public is way ahead of most health care providers in this country when it comes to Celiac Disease and other varieties of gluten-sensitivity.  Health care professionals had better figure out a way to catch up other than to criticize people who have decided to take responsibility for themselves by getting the help and information they need, even if they have to do it on their own.